This was a post I made about 6 months into my diagnosis with #parkinsons in 2023 and I knew nothing about movement disorders. Now I know many that suffer with conditions much worse than Parkinson’s. We are a family, united in purpose, bound by community and love. While I have been vocal about my disappointment with International Parkinson and Movement Disorder Society and their lack of meaningful ongoing engagement with patients, I am cautiously optimistic about the future. I know so many MDS’s
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