How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

The histopathology of a biopsy taken from the periphery of the lesion demonstrated dermal-epidermal junction detachment, suggestive of epidermolysis bullosa (EB) (Figure 2). A study of the ...

Musician Eddie Vedder attends the 'Matter Of Time' premiere during the 2025 Tribeca Festival, at Spring Studios, New York, NY, June 12, 2025. The documentary centers around Eddie Vedder's fundraising ...

Eddie Vedder and wife Jill share why they’ve become so involved in awareness for a rare disease in an exclusive clip from new film 'Matter of Time' ...

Eddie Vedder and his wife Jill share why they’ve become so heavily involved in the Epidermolysis Bullosa (EB) community in an exclusive clip from Matter of Time, a new documentary about the ...

The Pearl Jam frontman played a solo acoustic set following the premiere of a documentary about how he and his wife have ...

'90s Grunge Legend, 60, Makes Rare Red Carpet Appearance With Wife and 2 Kids first appeared on Parade on Jun 13, 2025 This ...

MACE stores across Cork will play their part in a nationwide campaign to raise awareness of epidermolysis bullosa (EB).

The FDA has approved Krystal Biotech’s gene therapy Vyjuvek for dystrophic epidermolysis bullosa (DEB), a rare genetic disease characterised by fragile skin that can split and blister even with ...