The National Institutes of Health are (still, again) trying to create a registry of autists, according to a report released ...

Last week, the Senate Appropriations Committee released a report on the country’s federal labor, health, human services, and ...

Staff at the Thompson Center for Autism and Neurodevelopment are concerned about plans to create a registry of Americans with ...

Compiling data and creating a new registry for autism CBS News reported that the National Institutes of Health, which operates under the Department of Health and Human Services, announced earlier ...

The Autism Science Foundation said the program raised concerns over privacy and confidentiality. On Friday, April 25, an HHS official told USA TODAY it is not creating such a registry.

NEW YORK (PIX11) — An autism registry will not be created, a spokesperson for the United States Department of Health and Human Services told PIX11 News in an email Thursday afternoon. Instead of ...

The Autism Science Foundation said in a statement that the limited details provided has worried families about confidentiality. "The use of registries and registry data in general can be a valuable ...

This week, National Institutes of Health Director Dr. Jay Bhattacharya sent shockwaves through the autism community by announcing the creation of a “disease registry” to track autistic people ...

SOURCE: CBS News, April 28, 2025 What This Means For You Autism research will continue without a new nationwide patient registry, using secure, private data to protect private information.

A 2017 Swedish study on autism that included 37,570 sets of twins, 2,642,064 full sibling pairs, and 877,812 half-sibling pairs — 14,516 of whom were diagnosed with a form of autism — found ...

SOURCE: CBS News, April 28, 2025 What This Means For You Autism research will continue without a new nationwide patient registry, using secure, private data to protect private information.