WASHINGTON, Dec. 4, 2025 /PRNewswire/ -- The National Organization for Rare Disorders (NORD(R)) today urged Congress to reauthorize the Rare Pediatric Disease Priority Review Voucher (RPD PRV) program ...
A couple with deep ties to the Chicago area is donating $11 million to Lurie Children’s Hospital in hopes of speeding research, treatment and diagnosis for children with rare and genetic disorders.
An Otago-led team has uncovered a genetic cause for a rare children's brain disorder. University of Otago associate professor Louise Bicknell, co-author of the study, said the international research ...
The Give Kids a Chance Act would extend the Rare Pediatric Disease Priority Review Voucher program for at least five more years, protecting one of the few incentives proven to drive new treatments for ...
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