Tayma, 9, struggles with the most severe version of Epidermolysis Bullosa, a rare, agonizing disorder that causes skin to ...

How patients who are living with Epidermolysis Bullosa fight their daily pain and focus on empowerment across continents ...

Throughout, viewers also see EB patients receiving three promising new, FDA-approved medications for the first time and get a ...

This month, the Holler family will be headed to the Tribeca Film Festival—which would normally be pretty heady stuff for a ...

Epidermolysis bullosa is a rare and severe skin disease where patients have fragile skin that blisters and tears. A Mt.

Eddie Vedder and wife Jill share why they’ve become so involved in awareness for a rare disease in an exclusive clip from new film 'Matter of Time' ...

Dermaliq Therapeutics and global non-profit organisation DEBRA Research have entered into a partnership aimed at advancing ...

Sophia is raising money for a national charity that supports people living with an incurable genetic skin condition, often ...

Epidermolysis bullosa is a rare and often devastating skin disorder where patients lack the adhesive proteins that hold the different layers of skin together. Each year, there are approximately ...